Tuesday, June 25, 2019

Another Connie update

Got to see Connie’s regular neurologist (hate even having to write that). She had some kind of shocking news that all the tests compared back to last year shows she didn’t have a seizure Friday. Best guess is that the high fever overheated the brain and shut things down. Big question is why the high fever normally associated with infection, but can’t locate an infection? I’m back to assumption of new chemo, but I’m not a Doctor. Going to talk it over with Oncologist’s nurse when she gets back to me.

She’s again very alert, doing the physical things about back to where she was Thursday. Mental things not so much. Real trouble there, along with peripheral vision issues with right eye still present.
Occupational therapist worked with her for about an hour and didn’t stress her too much which is great.

Right now, I think, plan is going to be for dismissal tomorrow with either home therapy care or assisted nursing rehab at a location near Beffy in FaIrview Park.

Sunday, June 23, 2019

Connie update

Her heart rate is still high, her blood pressure is still low.

Just met with Dr. She could do the physical questions, none of the mental ones. Watching her eat she’s still having hand eye coordination problems. Some small trembling also. Nurse just asked what she ate for breakfast, she couldn’t say the word “bacon” without lots of clues.

Going to observe one more day then probably dismiss on Monday. Thought that was shocking since she hasn’t been out of bed. PT will be in tomorrow, so that will be a challenge.

Think it’s more the “history” of seizures she has now because of the brain lesions which he said are the root of this issue. Unfortunately, we might have to get used to this awful pattern.

Friday, June 21, 2019

Connie gets admitted to the hospital

Been a tough day. Connie had port issues again, and I was ready to post for my ex-students who were nurses, if you had any friends who were nurses at the CCF's Moll Pavilion in Fairview Park, to warn them about me coming over for an ass ripping. Thankfully (for all involved), after a 2 hour trial and error, her port started working.

Day just got worse. Connie laid down to take a nap which isn’t unusual. Little longer than normal, then I started noticing “uh oh” problems. Called the squad, currently in the ER waiting to get her stabilized for a run downtown to the Clinic. Might be reaction to chemo, but my money is on a brain seizure.


Got to the Clinic downtown in the Neuro Clinic wing (H60B) in the night. Temperature has steadily come down, heart rate back to normal. Met with the Dr this morning, got 70-75% of the questions right. Past 12 hours (which she doesn’t remember at all) has gone from barely answering yes no questions to knowing where she is, day of the week, etc.

This is a minor mirror of last year. Where she is now in 12 hours took her 3 days last time. Drill will be the same. Tests, hook her head up to wires, watch the squiggly lines on the monitor (Bethany’s favorite) and hopefully get released with improvement mid week.

Tuesday, June 11, 2019

Bethany's Birthday / Kingsley's T-ball

For Bethany's birthday, we did dinner at Red Robin.  Then, we attended Kingsley's first T-ball game.



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Sunday, June 2, 2019

The Indoor Pool at Timber Ridge / Keegan visits the rig

Here at Timber Ridge Campground, they have an indoor pool. My grand daughter loves going in there.  It was also first Keegan's trip out here.

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My last post on this blog

This blog was started as a way to communicate to everyone in long form about Connie and my adventures.  It turned into a way to long form gi...