Bonus Days 7 & 8 (December 19 - 20th)

Yesterday was a good morning, then after her afternoon nap, a bad rest of the day.

We settled on a hospice, New Century Hospice.  They called us after the third place that I called listed as "in network" (who wasn't) by our insurance, called them to refer us.  Thank goodness for them doing that.  Our insurance has NOT been helpful during this process.

As soon as they got our information and ran our pre certification, they were out here to sign papers.  I would guess in their business, time is literally of the essence, as people could be calling with days left for their loved one.  I don't think that's our case, but we'll see.  One of those papers was a Do Not Resuscitate (DNR) form which is required in Texas for EMT's.  EMT's are required by state law to do everything necessary to bring a person back if they've stopped breathing or their heart has stopped.  With this form, she'll be spared those chest compressions, etc.

Today (the 20th), we'll have a nurse come out to do an evaluation.  Then, along with "the team", she'll make a plan for how many visits Connie will need, what kind of supplies she'll need, etc.  As I wondered out loud if we were unique being in an RV, guy from Hospice said they had a client out here (Pioneer RV Park) last year.

The end will be a journey.

Bonus Day 6 (December 18th)

As with all things insurance, finding a hospice that's "in network" and one that we're comfortable with suck.  Our insurance website listed 4 in Corpus Christi.  I contacted all four of them.  One had their phone disconnected.  One told me they hadn't been in network since 2018.  One took all my information, then found out they were out of network.  One still hasn't gotten back to me with benefits.  <sigh>.

Connie's doing "OK" comparatively.  She's getting dressed and sitting up.  She's eating, which is great.  She's fairly focused, still having a ton of cognitive issues.

Knowing how stubborn she is about a lot of things, she'll be with us for quite awhile which is our best hope.

Keep piling on me, I can handle it.....

What should have been stress free, relaxing Saturday has turned into anything but.

Spent the morning on the phone with either Curascript, the Doctor's Office and Xpress Scripts trying to get some answers.  Apparently, when the doctor placed the order for Xeloda (the chemo) with Curascript, she also placed an order for Ondansetron.  Xeloda was approved by insurance, but the Ondansetron was a quantity the insurance wouldn't allow.  Since they were both on the same order, no can do.  We get nothing and (try to) like it.  Furthering the complications are the doctors are all on spring break.

Let's go relax and take the dogs to the local Dog Park.

Nothing we can do about the meds, so we'll try and control what we can control.  

Why is the "check engine" light on in the truck?  Got to be kidding me.  Took it to O'Reilly's for diagnostics and there's an issue with the glow plug circuits in cylinder #3.  Sensational.  Reading the forums, there either has or hasn't been a recall for this.  So, we'll have something to do on Monday now which should have been another day off.

Rains it pours.  The park is going to have a cook out this afternoon, then we're going to check out the Oyster Fest.

Our friends Fred and Vickie are supposed to be pulling in with their MH later tomorrow.

Last day with the Cyber Knife

We had a late appointment today (2:30p) Connie's final Cyber Knife treatment.  Even though they were running late, and the system reset a couple of times, things went very well.  The staff even gave her a little certificate of completion.

Getting a little upset with CuraScript about one of the meds.  One of my pet peeves when I was teaching was a student who would see me in the hall late in the day to tell me they weren't going to be at rehearsal.  I just had them for 45 minutes two hours earlier.  Were they waiting in the hall all day for me to come by to tell me?  Getting the same thing with this deal.  We keep getting automated calls that everything is on target and we don't need to do any more to receive the meds.  The meds didn't come today.  We call and they tell us we need to do X, Y and Z.  Getting a little frustrated.

Since we ran a little late, dinner in wasn't an option so we went to Alice Faye's on the Bay.  It's Oyster Fest weekend here in Rockport-Fulton.  We'll try and check that out tomorrow.

No appointments until Tuesday.  That will be a relief.