Wednesday, April 16, 2014

Mt. Pleasant to Alexander, AR

Didn't really do much in Mt. Pleasant.  Was awoken night #1 to the sound of my fridge beeping and saying there was no flame.  That was weird, because it should have been running on electric.  Instead, for however long, it didn't flip over to AC and sucked out all of my propane.  I wasn't happy, especially knowing that the temps were going to be dropping like a rock in the next few days and the fireplace wouldn't keep up with it.  Ran over to the Mt. Pleasant KOA (looked like a dump, too) and got propane in one bottle, then Monday en route to Alexander, Arkansas (which is just south of Little Rock) I got the 2nd bottle filled at the Flying J.

I left a little earlier than planned on Monday because some Jack Wagon NEEDED to get on the road early (like started at 6:30a) and had to make sure his diesel was warmed up.  The ride here up I-30 was miserable.  Drove into a north wind and a driving rain the whole day.

Got to Cherokee Lakes RV Park around 2:30p after a leisurely stop at the Flying J since the guy didn't know how to run the propane machine and a lunch stop at a rest area with the girls.  Was a little bit of an issue because there was no signage where the GPS brought me, only a locked gate and No Trespassing.  I drove a little further, pulled off into a Volunteer Fire Station and called the joint after seeing on the Passport America site that, yes, it was gated and in a nature preserve.

The guy said he "didn't expect me so early."  I told him about the Jack Wagon, and I'll be damned if in walks Mrs. Jack Wagon!  They had come to the same park.  After we exchanged hello's, I told the owner "I'll bet they got here before me, didn't they?"  Sure enough, next morning, I'm up at 7:30a mainly because the sun comes up here at 6:30a, and they were already gone.  I don't get it.

I've gotten a little of chippy stuff done here for work, fixed some website things, updated our phone system, etc.

 This being my last "leisurely" stop before I start a run of "in day 1, stay day 2, out day 3", I decided to do a little cooking.  Smoked a Boston Butt and two chicken fryers on Tuesday, along with using my blueberries for a Blueberry Bread.  Freezer is full, everything came out wonderfully.
4 bags of pulled pork, 5 bags of cut up
chicken ready for the freezer.


Sloopy has been absolutely miserable.  First, its been cold.  Never a good thing for her.  Second they don't allow X-pens here.  So, she's constantly wanting out to lay in the sunshine, and doesn't understand the sentence, "they don't allow X-pens here."

Here for one more day, then we take off for West Memphis, AR (where I KNOW they allow X-pens.]

Sunday, April 13, 2014

Doctors, Drugs and Dogs

With the news from the latest CT scan, I made arrangements to fly back to Ohio to get things going.  I arrived late evening on April 5.

Being "homeless" can be quite scary - unless you have awesome friends!  Don & April picked me up from the airport and put me up for the evening.  Their 3 cockers were my welcoming committee.  Cassie must have known I was missing my girls since she kept watch and slept with me for a while.  Amazing how dogs just know how you feel.

On Sunday, our friend (my new landlord), Lenny came to get me.  Again, so thankful for such great friends!  Once back in Ashtabula, I was shown my room and I got unpacked.  Lenny's German Shepherd, Odessa, was very welcoming too.

My first doctor appointment was set for April 8.  The Ashtabula doctor had mentioned that they would need to order one of my drugs and it could take a week to get in.  <sigh>   That would just put me a week behind my normal schedule.

The following day, I received the call from the doctor that they would not be able to get the drug in until much later.  They recommended that I contact the doctor in Cleveland.

After going back and forth for two frustrating days, I finally was approved for a treatment in Cleveland.

So, I have now moved in with Bethany and James (and granddog, Tucker) for the week.  I will start out having an echogram on Monday.  Treatment day will be all day Thursday.

It was a frustrating week, but with everyone supporting me, I was able to stay calm.  Ready to get this new treatment started.

Thanks to all for the love and prayers!


Saturday, April 12, 2014

Sanger to Mount Pleasant

I had a great time in Sanger, TX at the Wagon Master RV Park.  Was a little bothered when I arrived and none of my non protected outlets were working.  Turns out there was something wrong in the pedestal that the park couldn't fix on their own with the 50 amp outlets, so I ran on 30 amps for the week.  Not a biggie.

Tuesday was another father/daughter day as Bethany had the day off so I went into Arlington to pick up her and a co-worker and we were off to Fort Worth.  Connie and I had been there before, so had some local knowledge.  Bethany was like "Finally!  I've been here almost a week and THIS is what I was expecting!" as we went to the Stockyards.  Had to stop at the Stockyards Hotel and have a Buffalo Butt Beer <link> while Bethany and Matt (or maybe it was Dan?) sat in saddles at the bar.

We stayed for the 4p cattle drive which I had a movie of, but something happened that I can't view it now.  <sigh>.

After the Stockyards, we headed down to Sundance Square and Riscky's BBQ which was fantastic eats.  Amazingly, it was started by two immigrants.  If you like good BBQ at a good price ($9.99 AUCE ribs???) and you're in Fort Worth, have to give it a big thumbs up.
Wednesday & Thursday were "work nights" as I was happy to go to Miguelito's to have dinner and a beverage with some cruise clients.  All great folks, and we certainly appreciate their business.  Connie and I used to do a "Client Appreciation Tour" every summer as we tried to figure out whether this full time RV'ing and keeping a business going was able to work.  This really brought me back to those good days.
After my Thursday night dinner (which was pretty early), I came back to the rig to share my last evening in Sanger with the two best card players in Texas (just ask them....), Fred and Vickie.  Played, drank and giggled through about 6 games of 3 handed hearts.  Fred killed us, both in the game and with his remarks.

Got away early (for me) Friday morning and put about 150 miles behind me.  Planned stop here in Mt. Pleasant, Texas at the Ramblin Fever RV Park.  Instantly got in trouble as I put up the dog pen for the girls and was told by "the guy" that I couldn't do that.  Didn't matter that it wasn't in the rules, he said.  So I took it down.  Just as I'm finishing setting up, the owner comes by and says "Mr. Sams (sic), I don't care if you put up your little dog pen."  So I put it up again.  That was fun in 80 degree heat.

I'm here till Monday, when we move again.  Thanks for visiting!

Monday, April 7, 2014

Some time in North Texas

Connie and I left Copano Bay RV Resort last Friday the 28th of March.  Our friend Karen had come down and she rode with up to San Antonio with us.  We stayed at the Stone Creek RV Park.

Friday night we saw the Alamo and walked the Riverwalk.  Always enjoyable, especially when its good and warm!

Saturday morning I took Karen to SAT for an early morning flight, then Connie and I went to the Valero Texas Open.

Got an itsy bitty bit of TV time behind Matt Kuchar on 16th green.  (That's me in the red hat!)

Texas State Capitol
Governor's Mansion
On Sunday, we rolled on to Austin, TX and stayed at Oak Forest River RV Park. We spent the day going to the State Capitol, the Governor's Mansion, Franklin's BBQ (it was closed), SoCo and 6th Street.  Austin's an incredibly different town.  They've passed a law making it illegal for stores to use throw away bags, regardless of paper or plastic.  Horrible for me.  Went to the store twice, forgot to take bags twice.  Ugh.

Our site at Oak Forest River
Wednesday, we made the rather uneventful trip to Santo, TX and Coffee Creek Resort for the North Texas Heartland Owner's Club rally.  Knew many of the people, met some more great owners.

Went out Wednesday night to the Natty Flat Smokehouse, that also had the largest rocking chair in Texas.



 Thursday, I went out with a couple of guys for some golf, then just hung around the rig.  Friday, the official opening day of the Rally, we went out to dinner at a Catfish Diner.

Saturday was the beginning of splitsville.  Opened the morning by helping cook bacon for the Rally's breakfast.  Around 10:30a, I took Connie to Dallas Love Field for her afternoon flight back to Ohio.  When I returned, we had a potluck dinner and I returned to the rig to watch the Final Four.

Our daughter, Bethany, was working at AT&T Stadium for the Final Four, and Sunday was her day off.  I drove back over to Arlington, and we had an enjoyable afternoon seeing some sights of Dallas (Texas Book Depository, downtown, etc.), then went to the NCAA's Fan Fest called "Bracket Town.".  Had lunch at a rather eclectic little diner, then headed back to the rig after dropping her back at the hotel.

Today (Monday) was getaway day from Santo and on to Sanger, TX and the Wagon Master RV Park. <link>  Pretty short ride, but I held off leaving to miss the traffic from the Texas Motor Speedway who had their race delayed.  Never touched the brakes the whole time.  Looked like there were PLENTY of good seats still available.

Was my first solo tear down, drive and set up.  Things went very well, and I felt very prepared.

Till next time!


Tuesday, April 1, 2014

Beginning to get some structure

All the doctors have gotten together, and we've got some clarity.

We will keep on plan and head to Santo, TX Wednesday where we'll join a Heartland Rally with 28 other RV's.

Connie will fly out to Cleveland from Dallas on Saturday, then have her Cleveland Clinic consultation in Ashtabula on Tuesday morning.  Our friends Don and April are going to pick her up and keep her overnight on Saturday, then our good friend Lenny is going to keep her for most of the month of April.

Park where we stay isn't open until May 1st, and I'm not going to pay $351 for a week or $1053 for a month at Indian Creek at Geneva on the Lake.  (I paid $300 A MONTH in Texas).  So, I'll hang around Dallas for a week, then make a slow trek north.  Here's a link to my framework map.  Everything is a "soft plan".

I've had a 26' boat in 6'-8' waves by myself from Eastlake to Fairport Harbor.  I was with others, but keeping a hand on the throttle and a hand on the wheel, I couldn't answer them on the radio when they kept asking me if "I was OK?"  That was scary.  This shouldn't be a big deal.  Already had a few offers to ride shotgun which I appreciate.  I've scheduled no overnights and go.  I'll do at least two nights at each stop.

That's the start of the adventure.  Hope you'll keep Connie in your prayers.

Sunday, March 30, 2014

They Will Tell The Good News Over The Phone......

The "not good news" requires a visit to the office.

On March 24th, I went in for a follow up CT Scan of the chest and pelvic area.  Doctor wanted to see how the new treatment was working.  Was to get the results on April 9th at my scheduled visit.  Blood work was all coming back good, so we were only going to be required to go every 2 weeks instead of every week.  Great since we were getting ready to make a mini road trip to see more of Texas.

Was able to enjoy a nice dinner (March 25) at Moby Dicks in Port Aransas with our Heartland Owners Coastal Bend group.  While there, I received a call from the doctor wanting us to come in the next day.

As we expected, the news was not good.  The cancer has progressed in the lungs (larger and more) and a new area was found on the liver.  The doctor is recommending changing the treatment again to be even more aggressive.

Options are to start the treatment here in TX on April 9th (and stay until June for monitoring ) or head back to OH for the new treatment there.  We chose the second option.

At this time, I am waiting for the doctors in OH to get the information and schedule the necessary visits and treatments.  I will fly back as soon as we have more details from the Cleveland Clinic.  Bob will be heading back solo with the rig.

We will be passing along information as it becomes available.

Thanks again to all our friends and family.  We certainly appreciate all the love , support and prayers!

Monday, March 3, 2014

Setting up to Get Away

Met with Connie's oncologist today.  As has been the case, we got the second best news that the tumor in her brain was stable -- not growing, not decreasing.  Got similar news about the tumor on her spine.
While it's not the best news, it's not the worst news, either.
We also started making arrangements for the transition to going back to Ohio.  The new treatment means she has to have blood work every week.  Not hard while here, but actually easier than you would think when we are on the road.  She is affiliated with Quest and LabCorp and we found each of them along our plotted travels, so no biggie.
We have CT scans scheduled for the chest and abdomen for the last week of March which will be our last set of tests here and the beginning of the baseline for our doctors at the Cleveland Clinic.
Thanks to everyone for their support.  Next entries will hopefully be less medical and more travel.

My last post on this blog

This blog was started as a way to communicate to everyone in long form about Connie and my adventures.  It turned into a way to long form gi...